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10 Comments

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  1. Cheryl Stotsky says:

    Kevin,
    I am so sorry to hear all that you are going thru. I am sending you love and strength to get thru another day, then another day, and another.

    Keep up the good fight.

    Cheryl Kupris-Stotsky

  2. Cheryl Stotsky says:

    Kevin,
    I am so sorry to hear all that you are going thru. I am sending you love and strength to get thru another day, then another day, and another.

    Keep up the good fight.

    Cheryl Kupris-Stotsky

  3. Cheryl Stotsky says:

    Kevin,
    I am so sorry to hear all that you are going thru. I am sending you love and strength to get thru another day, then another day, and another.

    Keep up the good fight.

    Cheryl Kupris-Stotsky

  4. joe says:

    just trying out the comments Kevin
    Thanks

  5. WELCOME HOME KEVIN!

    So Courageous, So Strong, So Willful.

    You’re in it to win it….Yeah!! (That was “J’s” line and we’re goin with it–) We are proud of you.

    Love,

    The (other) Mirkins

  6. Ariel Levin says:

    Think of you everyday cuz. Thank goodness your home. I’m sure the view is better where you’re sitting now.

  7. Jessi says:

    I came across your blog while I was trying to find information about PNH awareness and I’m glad I did. You and I were diagnosed with PNH within days of one another. I am sorry to hear about AA, but am thrilled to learn your journey has recently gone very well! Thank you for sharing your story. As you know this disease makes you feel alone, especially since we are so rare, and I enjoy the comic relief you can bring to this. Please continue to share your journey because I look forward to reading more.

  8. Karen says:

    Hi Kevin! I found your blog through a friend who shared your wonderful Good Blood video on Facebook. I’m sorry for your illness but grateful that you’ve done well so far with your BMT and that you’ve shared your experience in such an entertaining fashion via your video and blog. I had a BMT nearly 5 years ago and am in the midst of planning my 5-year rebirthday celebration – approximately 50 friends and family at our local Indian restaurant hangout. I’d like, with your permission, to play your video on the big screen TV there during my party. May I? My blog is mausmarrow.com. I’m adding your blog to my links there. Cheers, Karen

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